#ranttime As the WH is about to announce the “cause” of Autism like it‘s some f-in game show contestant. Reminder that Causation does not equal Correlation. Just because a pregnant woman might have taken Tylenol (the one safe pain reliever during pregnancy) does not mean that it caused Autism. Then recklessly recommending Leucorovin (a cancer drug) as the treatment is not science. My husband (a geneticist) read the study that they are basing their
ncsufoxes recommendations on. It was done on an extremely small sample size. Additionally the children in the study had a specific genetic marker, which is why the drug possibly helped some. There are over 100 genes associated with Autism. You‘d be hard pressed to find most drs to push for genetic testing, much less getting your insurance company to pay for it. Drs will be bombarded with calls to have this drug given to their child. It just makes the job of 7h
ncsufoxes Drs more complicated. It continues to sow distrust in drs & the science community. Families of Autistic kids need: better supports, better training for drs & therapists (oh the stories I could tell), better access to Medicaid, community supports/programs, better access to education/IEP goals, waiting lists that aren‘t years long to get evaluated, better job supports after high school/college…the list goes on & on. Ugh, this mom is tired 7h
TheBookHippie So so tired. 😵💫 7h
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AmyG All I can say is this administration needs to make up these theories and paint them as truth. Then they can proceed to make America healthy by protecting people from made up situations. It‘s all insanity. (edited) 7h
IriDas @ncsufoxes Yes, families need support and a radical shift in society so we don‘t have to spend our lives wondering what will happen to our children when we die. This culture is just so awful while simultaneously being so self-righteous (“America is the greatest” blah blah). It is exhausting just to function each day in this place. 6h
lil1inblue I'm so tired. I can't even write a coherent response. But I'm right there with you. This is infuriating. 😡 6h
AllDebooks Well said. ✊️ 6h
ncsufoxes In case anyone is interested, there was a paper written last year by JAMA & published on NIHs website. They analyzed the Swiss study that was done over 25 years studying 2.5 million children. Guess what JAMA & the study both concluded- Tylenol does not cause Autism or ADHD or other neurodevelopmental disorders. 6h
ncsufoxes https://pubmed.ncbi.nlm.nih.gov/38592388/ Read it before they pull it 6h
dabbe Just when you think it can't get weirder, or more chaotic, or more dangerous, or more ANYTHING ... this. I stand with you on very wobbly, tired legs, but I'm still standing! 💙✊🏻💙 6h
ncsufoxes We had a discussion about this last night at dinner. We went over Causation, Correlation, Confounding variables, longitudinal studies, sample size with our 10 & 16 year old. Teaching them young. 6h
CBee I saw the news about this but couldn‘t bring myself to read it. Not today, anyway. Thanks for summing it up for me 💚😢 5h
TheBookHippie @ncsufoxes I read that too. Sigh. 4h
TheBookHippie @ncsufoxes 💯 4h
ncsufoxes Stepping back up on my soapbox: what continues to be one of the most effective tools to assist families & Autistic children is access to early intervention. I have friends that still work in EI in NC & they have posted recently that due to cuts to Medicaid EI is set to lose up to $800,000. What that means is that the qualifications for eligibility will raise, which means more kids fall through the cracks. I have a kid that was missed. I worked in 1h
ncsufoxes EI for many years. When we moved to CA my middle child was 2. The first thing I did was refer him to EI because he wasn‘t saying many words. In 2011 in CA a child needed to have a 50% delay in order to receive EI services (my kid had 33%, he would have qualified in NC). He was missed & then our pediatrician wouldn‘t listen to me. I knew that there was something & I screamed into the void. I always advocate for EI because it can make a difference 1h
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