Home Feed
Home
Search
Search
Add Review, Blurb, Quote
Add
Activity
Activity
Profile
Profile
Losing My Mind
Losing My Mind: An Intimate Look at Life with Alzheimer's | Thomas DeBaggio
5 posts | 1 read | 2 to read
When Tom DeBaggio turned fifty-seven in 1999, he thought he was about to embark on the relaxing golden years of retirement -- time to spend with his family, his friends, the herb garden he had spent decades cultivating and from which he made a living. Then, one winter day, he mentioned to his doctor during a routine exam that he had been stumbling into forgetfulness, making his work difficult. After that fateful visit, and a subsequent battery of tests over several months, DeBaggio joined the legion of twelve million others afflicted with Alzheimer's disease. But under such a curse, DeBaggio was also given one of the greatest gifts: the ability to chart the ups and downs of his own failing mind. Losing My Mind is an extraordinary first-person account of early onset Alzheimer's -- the form of the disease that ravages younger, more alert minds. DeBaggio started writing on the first day of his diagnosis and has continued despite his slipping grasp on one of life's greatest treasures, memory. In an inspiring and detailed account, DeBaggio paints a vivid picture of the splendor of memory and the pain that comes from its loss. Whether describing the happy days of a youth spent in a much more innocent time or evaluating how his disease has affected those around him, DeBaggio poignantly depicts one of the most important parts of our lives -- remembrance -- and how we often take it for granted. But to DeBaggio, memory is more than just an account of a time long past, it is one's ability to function, to think, and ultimately, to survive. As his life becomes reduced to moments of clarity, the true power of thought and his ability to connect to the world shine through, and in DeBaggio's case, it is as much in the lack of functioning as it is in the ability to function that one finds love, hope and the relaxing golden years of peace. At once an autobiography, a medical history and a testament to the beauty of memory, Losing My Mind is more than just a story of Alzheimer's, it is the captivating tale of one man's battle to stay connected with the world and his own life.
Amazon Indiebound Barnes and Noble WorldCat Goodreads LibraryThing
Pick icon
100%
blurb
Thatbooknerd
post image

Author Thomas DeBaggio, (1942-2011).

Photos before and during/after Alzheimer‘s.

Diagnosis: 57 years old.
Death: 69 years old.
Over a decade of pure hell. 💔

AmyG This was my Mom. She had it, too, for 11 years. Horrible disease. 😞 7d
12 likes1 comment
review
Thatbooknerd
post image
Pickpick

I wanted to read this book quickly to get it out of my house, and donate it to a local little free library. These memoirs are all too personal to me—as a hospice volunteer I spend time with patients (and their families) who have this demon of a disease; my father has it too, and as of now, has been on hospice almost 3 months. The author was diagnosed with early onset at only 57 years old, and died at 69. Here, he shares his early experiences ⬇️

Thatbooknerd with the disease, writing in a unique way, in increments: memories of childhood, adolescence, adulthood; research on the disease; the current hell he was experiencing each moment, day, and night. He shares the reactions of family, friends, and customers from the gardening business he ran for 25 years. Some people sent him unwanted religious information and false hope cures in the mail. He did an interview with NPR and wrote another book. In⬇️ 7d
charl08 Sending my best to you and the family. Such a hard diagnosis. 7d
Thatbooknerd the beginning, he wanted to die because he knew what was coming and was already so miserable, but his wife pushed back, so he chose to ‘stay‘ and try to record his experiences in an attempt to shed light on this horrific thief of all thieves: Alzheimer‘s. Tissues will be needed. 7d
See All 6 Comments
Amiable My husband and I have a friend who was diagnosed with frontotemporal dementia at 56. He‘s 7 years into it now and it‘s rough. I need to read this to better understand what he‘s going (gone) through. 7d
AmyG I‘m so sorry about your Dad. My Mom had this. Horrible disease. Heartbreaking. 7d
DaveGreen7777 I‘m so sorry about your father. 😔 Alzheimer‘s is such a terrible disease, it causes so much pain for the people who have it, as well as their loved ones who have to watch what‘s happening to them. 😢 6d
15 likes6 comments
quote
Thatbooknerd
post image

It may appear to be just another illness, especially of the elderly, but Alzheimer‘s is a unique and wrenching disease that destroys the mind, without which you lose your sense of being human. In its early stages, when you are most sensitively aware, you watch helplessly as you slowly lose yourself. Memory disappears. Language is gone. You forget who you are and become lost and dependent. Yet you continue on in silence, the body unsure ⬇️

Thatbooknerd and hesitating, as the diabolical disease proceeds to kill you by slowly destroying what remains of your body and your life. But the destruction continues, doing its best to uproot your loved ones and dip their hearts in the fire. 7d
13 likes1 comment
quote
Thatbooknerd
post image

I know it is difficult for them to watch me deteriorate and if I keep quiet they won‘t see what is really happening. I do not want to make them suffer with me but I also want them to understand the uncontrolled evil this disease represents. They must know, as others should, the destructive power of it. Although subtle in attack, Alzheimer‘s is the closest thing to being eaten alive slowly. I am losing my ability to wrote. I see the signs⬇️

Thatbooknerd of verbal atrophy every day. Cut my legs off but don‘t take away my ability to think, dream, and write. It is too late to reconstruct the dreams of my youth or create a new life. I am staring a monster in the face. 7d
11 likes1 comment
blurb
Thatbooknerd
post image

I‘m 82 pages in, and this is a hard read. These kinds of memoirs always are.
You can see Thomas isn‘t there in this photo…he‘s far away somewhere. Link to listen: Tom' DeBaggio's Decade With Alzheimer's Disease

https://www.npr.org/2010/06/16/127857149/a-decade-of-alzheimers-devastating-impa...