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#terminalillness
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Lcsmcat
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Pickpick

Fourth in my #24in2024, and for my irl book club, which I had to miss for a work trip. It‘s a tear-jerker and I usually don‘t like having my emotions manipulated. But the stories were so engaging and I was rooting for them both to make it to their 100th, so I didn‘t feel manipulated. I‘m just sorry I missed out on the discussion.

review
Suet624
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Pickpick

@JenniferEgnor wrote a review of this book and posted several entries and I can‘t top them. So check those out. I‘m not a novice to this subject matter. I‘ve done the type of caregiving she recommends when someone is dying. What this book does so well is remind us that dying will happen and you really do need to prepare, for yourself and your family. She outlines pitfalls and possibilities. I‘m going to purchase the paper version to refer back to.

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review
JenniferEgnor
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Pickpick

I can‘t recommend this book enough! It‘s a gentle guide to all the things you need to think about, prepare for, and take action on for how to plan a good death. It can seem overwhelming but it‘s worth doing. This is especially personal to the author due to the experience she had with her father. We all deserve a good death. It‘s up to all of us to keep working towards a world that is more loving and just for everyone. We can, and we must.

JenniferEgnor I was intrigued by the sky lantern release on the cover, this is illegal on many places due to fire hazard and littering. Bubbles would be a great way to release instead. I highly recommend this book along with Advice for Future Corpses and Those Who Love Them for planning others and your death. This book has many resources to help you do that. 3mo
SamAnne Stacking. Agree on not releasing lanterns, balloons, etc! Different perspective: I hated the Advice for Future Corpses book. For me, helping my Mom go through a difficult, scary, painful death, leaving the world with a lot of loose emotional ends, I couldn‘t haven chosen a worse book to read. All death experiences discussed were peaceful easy deaths, Buddhists surrounding their loved one. I found it infuriating. No help for a difficult death. 3mo
JenniferEgnor @SamAnne I agree with you 100%, these conversations need to be had. Everything isn‘t always warm and perfect. It‘s often traumatic and hurtful. I am sorry that you had this experience and I thank you for sharing it with me. 3mo
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quote
JenniferEgnor
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Late Fragment

And did you get what
You wanted from this life, even so?
I did.
And what did you want?
To call myself beloved, to feel myself
Beloved on the earth.

—Raymond Carver, written not long before his death in 1988

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JenniferEgnor
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Doesn‘t everything die at last, and too soon?
Tell me, what is it you plan to do
with your one wild and precious life?

—Mary Oliver

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JenniferEgnor
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Assisted Death isn‘t new. Throughout history, some medical professionals have quietly hastened death when they believed that their moral obligation to relieve suffering overrode a blanket duty to prolong life. Among them is one of the most admired people in Western medical history: the microbiologist Louis Pasteur, the father of the germ theory of disease, the inventor of pasteurization, and the developer of inoculations for rabies. In the mid⬇️

JenniferEgnor 1880s, at the Hotel Dieu, a famous Parisian hospital, Pasteur treated five Russian farmers, all of whom had been bitten by the same rabid wolf, and were dying horrible, protracted deaths. When they did not respond to Pasteur‘s new serum, the farmers pleaded to be put out of their misery. Pasteur conferred with the hospital‘s head pharmacist, who compounded a lethal prescription, which the farmers took of their own volition. They died (edited) 3mo
JenniferEgnor almost immediately. 3mo
Bklover That was kind of him! 3mo
JenniferEgnor @Bklover it‘s what I would‘ve wanted! Who can blame them? He did a compassionate thing. 3mo
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JenniferEgnor
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Leave a good emotional legacy. Enjoy the time you have left. Don‘t postpone joy. Go on an adventure. Leave loved ones in good shape.

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JenniferEgnor
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Transience, sickness, aging, and death are not the signs of failure they‘ve come to seem in our can-do society. We are part of an eternal cycle of birth, growth, and decay.

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JenniferEgnor
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The United States Supreme Court has affirmed and all major medical associations agree, that all competent adults have the legal right to refuse any form of medical treatment, or to ask for its withdrawal, at any time, for any reason. It isn‘t suicide, assisted death, homicide, or euthanasia. It‘s letting nature take its course, and it‘s your legal and moral right. For clarifying these constitutional rights, we can thank the parents of a young⬇️

JenniferEgnor woman who worked in a cheese factory in the 1980s. Her name was Nancy Cruzan, and she was 25. On a cold January night in 1983, she was driving home alone from a bar outside Carthage, Missouri, when her car skidded on ice and plunged off the road. She was thrown from her car and landed face down in a water filled ditch. Paramedics arrived about 14 minutes later, pounded on Nancy‘s chest, shocked her heart until it resumed beating, and forced air 3mo
JenniferEgnor into her lungs until they began to rise and fall. But Nancy was too brain damaged to ever again speak or recognize her family. Incapable of eating or swallowing, her body was kept alive by a feeding tube in a state funded nursing home. But the “self” that her family recognized as Nancy Cruzan was gone. Six years later, against opposition from the state of Missouri, her devout Catholic parents petitioned the United States Supreme Court for 3mo
JenniferEgnor permission to remove the feeding tube that kept their daughter suspended in what one of her doctors called “a living hell.” A deeply divided Supreme Court affirmed that all intellectually competent people have the right to refuse medical treatment. But Missouri could require “convincing evidence” of Cruzan‘s wishes. This, and similar rulings, gave rise to the living will. In 1990, a Missouri lower court accepted additional testimony and 3mo
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JenniferEgnor permitted the removal of the feeding tube. A day after Christmas, seven years after her fatal accident, Nancy Cruzan was released from the long, technologically interrupted process of her dying. The Cruzan decision introduced many laypeople to one of the four pillars of medical ethics, that of patient autonomy: the right to determine and refuse medical treatment. The other three pillars are treating patients justly; benefiting them; not harming 3mo
JenniferEgnor them. A doctor who agrees to end an unwanted treatment is not violating the Hippocratic oath. They are honoring your autonomy. 3mo
SamAnne Did you see the recent long read in the NYT about the woman who had suffered from anorexia her whole life going to palliative care and the doctors working with her? Fascinating read about the intersection of ethics, personal choice and medical care. 3mo
JenniferEgnor @SamAnne I didn‘t, but I‘m going to look it up. 3mo
SamAnne Open paywall! I‘m not dealing with anything like your describe above, but I did decline-at least for the time being—some serious chemo for breast cancer. Will cause heart damage among other side effects. Had successful surgery and agreed to radiation and am in remission. I feared I was going to lose my doctor for awhile—I was being sent certified letters scolding me. It‘s my body! 3mo
SamAnne Instead of chemo I traveled To Hawaii, Florida Keys, Iceland, Ireland. My sweetie and I decided to not put off the bucket list items. This week I hiked to 11,000 feet to see the wintering Monarch butterflies in Mexico. I would not have had the physical ability for these adventures—perhaps ever—if I did their regiment. I‘m going for 10 glorious years—hopefully more—rather than 20 shitty ones. #mybodymychoice 3mo
JenniferEgnor @SamAnne very interesting article, thanks for sharing. I agree, you should have the right to make a Dec about anything that happens to your body. It sounds like the butterflies were amazing. Our conversation here made me think back to an older podcast episode with a similar question. https://podcasts.apple.com/us/podcast/first-person/id1624946521?i=1000610839932 3mo
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blurb
CoffeeNBooks
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#12Booksof2023
Polly is in the hospital fighting brain cancer, and is trying to make the most of every day. Annie is in her 30s and unhappy with how her life has turned out so far. When Annie and Polly happen to meet each other, Polly immediately befriends Annie and convinces her to do one happy thing every day for 100 days. @Andrew65

Andrew65 This sounds a good and uplifting read. 4mo
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