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Knocking on Heaven's Door
Knocking on Heaven's Door: The Path to a Better Way of Death | Katy Butler
6 posts | 4 read | 2 to read
In this visionary memoir, based on a groundbreaking New York Times Magazine story, award-winning journalist Katy Butler ponders her parents’ desires for “Good Deaths” and the forces within medicine that stood in the way. Katy Butler was living thousands of miles from her vigorous and self-reliant parents when the call came: a crippling stroke had left her proud seventy-nine-year-old father unable to fasten a belt or complete a sentence. Tragedy at first drew the family closer: her mother devoted herself to caregiving, and Butler joined the twenty-four million Americans helping shepherd parents through their final declines. Then doctors outfitted her father with a pacemaker, keeping his heart going but doing nothing to prevent his six-year slide into dementia, near-blindness, and misery. When he told his exhausted wife, “I’m living too long,” mother and daughter were forced to confront a series of wrenching moral questions. When does death stop being a curse and become a blessing? Where is the line between saving a life and prolonging a dying? When do you say to a doctor, “Let my loved one go?” When doctors refused to disable the pacemaker, condemning her father to a prolonged and agonizing death, Butler set out to understand why. Her quest had barely begun when her mother took another path. Faced with her own grave illness, she rebelled against her doctors, refused open-heart surgery, and met death head-on. With a reporter’s skill and a daughter’s love, Butler explores what happens when our terror of death collides with the technological imperatives of medicine. Her provocative thesis is that modern medicine, in its pursuit of maximum longevity, often creates more suffering than it prevents. This revolutionary blend of memoir and investigative reporting lays bare the tangled web of technology, medicine, and commerce that dying has become. And it chronicles the rise of Slow Medicine, a new movement trying to reclaim the “Good Deaths” our ancestors prized. Knocking on Heaven’s Door is a map through the labyrinth of a broken medical system. It will inspire the difficult conversations we need to have with loved ones as it illuminates the path to a better way of death.
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GoneFishing

She grew up in times when almost all doctors practiced what the Italians had taken to calling Slow Medicine: they made house calls, earned incomes roughly equal to those of their patients, served the same families for decades, didn‘t get gifts from drug and device salesmen, and didn‘t prescribe technologies they indirectly profited from.

Suet624 Sigh. 6y
52 likes1 comment
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GoneFishing

When a fine old carpet is eaten by mice, the colors and patterns of what's left behind do not change,' wrote my neighbor and friend, the poet Jane Hirschfield, after she visited an old friend suffering from Alzheimer's disease in a nursing home. And so it was with my father. His mind did not melt evenly into undistinguishable lumps, like a dissolving sand castle. It was ravaged selectively, like Tintern Abbey, the Cistercian monastery...

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GoneFishing

Nothing much will change until we pay doctors and hospitals when they appropriately do less as well as we do when they inappropriately do too much.

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GoneFishing

When my father was vigorous and lucid, (my mother) regarded medicine as her wily ally in a lifelong campaign to keep old age, sickness, and death at bay. Now ally and foe exchanged masks. Medicine looked more like the enemy, and death the friend.

review
StephAuteri
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And I finished this one yesterday. (I know. Uplifting reading choice for the holidays). I'm fascinated by books on end-of-life care, a la Atul Gawande's Being Mortal, Paul Kalanithi's When Breath Becomes Air, and Ray Moynihan's Selling Sickness. This mix of memoir and investigative journalism was thoughtful and beautifully written. I borrowed it from the library, but will be picking up a copy for my permanent collection.

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StephAuteri
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Once read a piece by Butler in Creative Nonfiction, or maybe The Sun, on end-of-life decisions. I thought it was gorgeous and fascinating and thoughtful and I've been meaning to read this book ever since.